Story
In 2013, I was diagnosed with the rare, life threatening condition, Acquired Thrombotic Thrombocytopenic Purpura (aTTP). At first, I felt overwhelmed by uncertainty, but I was also fortunate to receive a quick diagnosis, and specialist care. My symptoms were recognised by an experienced haematologist who arranged for me to be transferred to the BRI Specialist Centre for emergency treatment.
Not everyone with TTP is so fortunate. Because it is such a rare condition, it can be difficult to recognise, and some symptoms may be misunderstood or treated too late. That is why awareness, education, and access to expert care are so important. TTP affects only 6 to 10 people per million, and while treatment has improved greatly in recent years, there is still much more to learn about its causes, triggers, and long-term impact.
Living with TTP means facing a lifelong condition with no cure, but it also means being supported by a community of specialists, advocates, and families who understand how vital information and support can be. I have seen first-hand the difference that the TTP Network makes through education, advocacy, and reassurance for patients and families.
That is why I am taking part in the TTPNetwork Side by Side Walk on Sunday, 27th September 2026. I am walking to help improve outcomes and quality of life for everyone affected by TTP, and to support the important work that raises awareness and offers hope for the future.
My fundraising target is £100, and every donation will help strengthen support for people living with TTP and their loved ones. Please sponsor my walk and stand side by side with me in support of this vital cause.