Supporting the MSA Trust – LMC Coffee & Cake Morning

Multiple System Atrophy (MSA) is a rare, rapidly progressive and terminal neurological condition. It affects the autonomic nervous system and movement, leading to severe problems with balance, coordination, speech, eating, blood pressure regulation, bladder control and mobility amongst other things.

There is currently no cure and no treatment to slow the progression of MSA. Symptoms worsen quickly, and life expectancy is typically around 6–10 years from the onset of symptoms. Sadly, diagnosis often comes well after symptoms have begun.

MSA is frequently mistaken for Parkinson’s disease in the early stages. Many people spend years being treated for Parkinson’s before it becomes clear that those treatments are not working and doctors begin to look for alternative diagnoses. Because MSA is so rare, not all healthcare professionals are familiar with it — and receiving an accurate diagnosis can be a long and difficult journey.

MSA affects approximately 4.5–5 people per 100,000. In the UK and Ireland, only around 3,000–3,500 people are currently living with the condition. Many people have never heard of MSA until it directly impacts someone they know.

Despite its rarity, MSA has affected the families of at least two members of the LMC team. Given how uncommon this condition is, that in itself is extraordinary. While it is devastating to face, there is comfort in having someone who truly understands the challenges, conversations and emotions that come with this diagnosis.

The MSA Trust is the UK charity dedicated to supporting people living with MSA and their families, while also funding vital research into this devastating illness. They provide specialist healthcare professional support, practical advice, social welfare guidance and hope for future treatments.

Because MSA is rare, fast-moving and incurable, raising awareness and funding is crucial.

By supporting LMC’s Coffee & Cake Morning, you are helping to fund specialist services and essential research aimed at understanding the cause of MSA and ultimately finding a cure.

Every cup, every slice and every donation makes a difference.

Please join us for coffee (or tea!), cake and a chance to raise vital funds for families affected by this incredibly rare and life-limiting condition.

Thank you for your support 💛