My journey started in 2012 when I was about 23/24 years old. I had just been diagnosed with PCOS and then had an MRI scan, which showed a tumor on my pituitary gland. This is when I was introduced to little Timmy the tumor.

From then on, I was a regular at the hospital seeing my endocrinologist, having blood tests and MRI scans. Everything was stable for quite a while, apart from the hormone side effects, headaches and dizzy spells now and again. Had a change of medication. All going well. My prolactin levels were still sky high, and I had ongoing headaches, which were getting worse. My medication was doubled and doubled again. Timmy was growing, and my medication wasn't working.

My case was referred to King's College Hospital for a second opinion. It was time to evict Timmy. In January 2026, Timmy was removed. Surgery went very well. I had a few issues in the hospital with low sodium levels and developed diabetes insipidus (DI). 4/5 days later, all was good, and I was sent home to recover with a party bag of medication.

Unfortunately, 4 days later, I was rushed to Croydon University Hospital with severe, life-threatening hyponatremia and a risk of brain swelling during my treatment, and I also developed DI again. I was looked after extremely well and, after about a week, was sent home.

To this day, my endocrinologist and GP have been keeping close tabs on me. My pituitary gland is in the reset mode, and I'm currently waiting for different results to see what hormones I may be lacking.

Each day, I have been slowly building up my energy and getting out for walks. I listen to my body and take things as they come. I am going to continue this and eventually get my energy and strength back up and one day run again.

My journey isn't over, but I'm on the right road to recovery! I'm continuing to challenge myself to get out and walk, maybe I can hit 100km in April! Some walks are longer than others. Some walks are slower than others. Some walks I have more rest stops than others, but I'm getting out.

I want to raise awareness, as it can affect many people, and some people go through life without knowing they have a pituitary condition. However, if you feel like you can support and help me raise money for this charity, please consider donating. Any amount, no matter how small, is appreciated.

The Pituritary Foundation has been amazing at providing information about the condition over the years. I joined their support group pre-surgery to talk to others about their journey, surgery stories, after care, etc. I am now dependent on steroids and am still learning about this new way of life. They provide webinars, free helplines with endocrine nurses and people who understand what you're going through physically and mentally. All money raised goes directly to fund specialist help, psychological support, vital services, and reliable information for people affected by pituitary conditions across the UK.

Sorry for the long story, but thank you for reading my journey and helping me raise awareness

Love from

Claire and (Evicted) Timmy :o)