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Claire's fundraiser for Batten Disease Family Association

Claire Dobson is raising money for Batten Disease Family Association

London Summer Walk 2026 · 22 August 2026 ·

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Story

Thanks for taking the time to visit my JustGiving page.

I will be joining the London Summer Walk on 22 August 2026 to raise money for the Batten Disease Family Association, walking 25 km from Woolwich Barracks.

Ben, my friend, was just 12 years old when he passed away with Late Infantile Battens Disease. As this cruel disease progressed, Ben lost all his abilities, talking, walking and eventually sight.

Please donate on my Justgiving page to ensure that I can help the BDFA to continue providing support, advocacy and information to children and young people with Battens Disease and support their whole family. I know how valuable this is for the families who this disease effects.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£1,472.48
+ £312.50 Gift Aid
Online
£1,472.48
Offline
£0.00

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