The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.

Felix, arrived on the 26th September 2024, the perfect baby boy. At just six months old his families suspicions that something wasn’t quite were sadly confirmed, Felix was diagnosed with an incurable mitochondrial disease.

Please stand with me and help The Lily Foundation support all those affected by this cruel disease and fund crucial research to find a cure. Together lets fight Mitochondrial Disease and fight for hope.