Over the last few years, Ellie who has Mitochondrial Disease has spent more time in hospitals than any child should. She also has regular appointments at Alder Hey Children’s Hospital and travels to Newcastle to see the specialist mitochondrial team. She lives with kidney problems, an unsafe swallow and fatigue, alongside her spina bifida and hydrocephalus. But if you met her, those probably wouldn’t be the first things you’d notice.

You’d meet a happy, cheeky little girl with the biggest smile, who loves making people laugh and getting up to mischief. She continues to surprise us with just how determined and resilient she is.

Every day in the UK a child is born with Mitochondrial Disease yet there are no real treatments or a cure. The Lily Foundation want to change this, and Team Ellie want to help them. Please donate if you can and help them make a difference.