Thanks for taking the time to visit my JustGiving page.

On Saturday 31st May, we are hosting a Wild West Charity Fundraising evening. The evening will include line dancing, live music, a disco, Selfie pods, games and a raffle.

I have set up this Just Giving Page because many people who can't attend the Wild West event have said that they would still like to donate to the cause. For this I say a great big THANK YOU!

PWS is a rare genetic disorder that occurs in approximately 1 out of every 22,000 births. It is caused by a loss of genetic material on chromosome 15. The hallmark symptom of PWS is insatiable hunger, known as Hyperphagia, which develops some time in childhood. For someone with PWS, the feeling of fullness after eating is absent. This is the aspect of PWS that can lead to life-limiting childhood obesity and limits the ability for individuals with PWS to live independently in the future. PWS also causes growth hormone deficiency, thyroid deficiency, developmental delays, intellectual disability, respiratory problems, infertility, sleep disturbances, poor bone health, scoliosis, decreased sensitivity to pain, poor control of body temperature, decreased motility, gastrointestinal issues, emotional and behavioural challenges, social immaturity, increased risk of central adrenal insufficiency, seizures and mental illness.

As an independent charity, FPWR UK relies solely on the support of volunteers, fundraisers and donors to continue their potentially life changing research to tackle the challenges of PWS.

Aurelia, Chris, myself and all of our PWS community would like to say a massive THANK YOU for your generosity and support. You are helping us change lives and the future for people living with PWS xxx