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Clare, Sam and Bob's fundraiser for Rare Find Foundation

Clare Byatt is raising money for Rare Find Foundation

Melbourne Marathon · 11 October 2026

Rare Find Foundation exists to improve the lives of those living with Tay-Sachs and Sandhoff diseases through support, information, and advocacy, as well as to support research of these conditions to help find a cure.

Story

We have entered the Melbourne Marathon!!!!!!!

Clare has never run a marathon before and needed a challenge! Clare then roped in Sam and Bob to come along for the ride!

The Melbourne Marathon is on 11th October 2026.

We are asking for you to dig deep and to give to a very worthy cause.

The Rare Find Foundation is the only charity of their kind in Australia and they support families affected by Tay-Sachs and Sandhoff Diseases.

Tay-Sachs and Sandhoff diseases very rare in Australia and across the world and are related genetic disorders. They occur when the body’s cells are unable to process and clear waste products. Unfortunately, there is no cure and the progressive loss of function caused by these diseases eventually leads to early death.

The founder of Rare Find Foundation, Anna, is a dear friend of Clare's and we would like to raise as much money as we can for this wonderful charity.

Anna lost her beautiful son Sebby to Tay-Sachs when he was only 22 months old and has worked tirelessly to raise awareness and offer support.

Clare's training is well underway and you can follow her on Strava, just search for Clare Byatt.

Donation summary

Total
A$1,719.20
Online
A$1,719.20
Offline
A$0.00

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