The events this year are deeply personal as at only one year old, our precious boy, Alfred, has been diagnosed with something no parent should ever have to face: Vascular Ehlers-Danlos Syndrome (vEDS). 💔

A rare, life-threatening genetic condition that has forever changed the rhythm of our lives.

We now live with a quiet fear that shadows even the brightest of days. Alfreds laughter is a melody that we cling to. His cuddles, our sanctuary. We carry the weight of this diagnosis with heavy hearts, yet filled with fierce, unwavering love.

We are determined not to let this fight go unnoticed. The White Feather Ball is our call for awareness, for action, and for compassion.

All proceeds from this event will go to Annabelle's Challenge, a charity that has walked beside us when the world felt like it was falling apart. They stand as a lifeline for families like ours. Offering knowledge, comfort, and community in the face of a condition that threatens so much.

Vascular Ehlers-Danlos Syndrome (vEDS) is a brutal disorder. It weakens the very fabric of the body, its tissues, arteries, and internal organs, leaving them terrifyingly fragile. For those affected, every day carries the silent threat of a sudden rupture. Every heartbeat is a gift.

We will be honouring the angels who guide us, and the warriors who also fight invisible battles. Please join us to help shine a light on a such rare condition, and be the voice for those too small to speak.

𝐋𝐨𝐭𝐬 𝐨𝐟 𝐥𝐨𝐯𝐞

𝐂𝐨𝐧𝐧𝐨𝐫 & 𝐄𝐦𝐦𝐚

🦓🪽💜