Cystic Fibrosis is one of the most common life shortening chronic fatal genetic diseases affecting around 10,800 children and young adults in the UK. It affects the lungs and digestive system, making it difficult to breathe and digest food.

I was diagnosed with Cystic Fibrosis at the age of 2 and underwent two life-saving bowel surgeries, spending weeks recovering in intensive care. Without the incredible care and dedication of the staff at the Cystic Fibrosis Unit who have supported me year after year, my story could have been very different. I truly owe them so much.

To put things into perspective, when I was born in 1996, there wasn’t even an Adult Cystic Fibrosis Unit. The funding, research, and resources simply weren’t there.

The average life expectancy is in the late 40s, 50s, and although new drug therapies have improved there is still no cure. New medications and therapies are helping people with CF live longer, fuller lives. But we’re not done yet.

There’s still so much more to be done. Children are still being born with this condition. Adults are still fighting daily battles with their health. And while progress has been made, we need continued investment in research, treatment access, and support services—so that one day, every person with CF can live a life that’s not limited by their condition.

Currently CF Care fund grants to individuals and families for food vouchers, energy, hospital travel, counselling, and welfare grants. We also fund improvements to hospital CF units and provide vital medical equipment that the NHS are unable to supply.

I’m raising money to help make that future possible.

Thank you for your support.