On 21st October 2024 our mum was diagnosed with Motor Neurone Disease at 61 years old.

MND (Motor Neurone Disease) is when messages from the motor neurones gradually stop reaching the muscles in the body. This leads the muscles to weaken, stiffen and waste, which affect how you walk, talk, eat, drink and breathe. MND, sadly, is a fatal rapidly progressing disease that affects the brain and spinal cord. The disease kills a third of people within a year and more than half within two years of diagnosis.

MND affects up to 5,000 adults in the UK at any one time. There is a 1 in 300 risk of getting MND across a lifetime. It can affect adults of any age, but is more likely to affect people over 50.

The MND Association focuses on improving access to care, research and campaigning for those people living with or affected by MND in England, Wales and Northern Ireland.

Their vision is a world free from MND. Realising this vision means investing more funds in research, developing strategic partnerships with the research community and research funding bodies, and ensuring that advances in understanding and treating MND are communicated as quickly and effectively as possible. At the moment there is no treatment and there is no cure.

The MND association have already provided us with a huge amount of guidance since our mums diagnosis and will continue to be an invaluable support system as we navigate through this.

On January 25th 2025, we will be taking part in the London Winter Walk challenge to raise money for the MND association.

Your donation and support would be hugely appreciated, no matter how small. 🧡💙

Love Courtney & Frankie x