Thanks for taking the time to visit my JustGiving page.

I'm raising funds for the Intractable Epilepsy Charity because they help families afford essential medical care. In November 2018 the law was changed after successful media campaigns by two parents for their children. Prior to this, they had to travel and sneak cannabis medicines into the country risking criminalisation. Now NHS and private consultants on the GMC specialist register can prescribe them. However, to date there are only 3 known paediatric epilepsy recipients of NHS prescriptions for full spectrum cannabis based prescription medicines (CBPMs), nearly all prescriptions are private costing upwards of £1000 a month for many.

This is where Intractable steps in to help with funds toward private CBPM prescriptions when all NHS routes have been exhausted. These families know their children will have seizures return with a vengeance if they can't afford the monthly fees, something no family should face month after month. They don't have time to wait while the NHS decides how to allocate funding for these medicines, their survival depends on this treatment now.

Due to my own disabilities there aren't many activities I can still do, but I've found peace and improved my mental health significantly through fibre arts. This month, from January 12-February 12 (International Epilepsy Day), I'll be doing some form of fibre craft daily to help raise funds for this incredible charity. At the end of it I will also donate the proceeds from the finished products (although they are likely to take longer than a month, spindle spinning, knitting, weaving and embroidery are slow crafts). I may not be able to update every day but I will keep a photo log for weekly updates.

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Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.