A group of family and friends (Inc. adults and children), will be taking part in a 75K inflatable race challenge on 10th June to raise money and awareness of Creutzfeldt-Jakob Disease (CJD) in memory of Craig’s mum, Val Tynan.

Sadly, Val was taken away from us all far too early after a short battle with CJD in June 2022. Val was adored and loved by all and was a wonderful daughter, sister, wife, mum, grandma and friend.

Collectively as a team we aim to race a total of 75K on the world's largest inflatable course at Harwood House.

CJD is a rare, rapidly progressive, and invariably fatal neurodegenerative disorder that affects the brain and nervous system. The lifetime risk of CJD is around 1 in 5,000.

The CJD Support Network was set up in 1995 by relatives of people who have died with CJD, and is the only UK charity dedicated to the disease. Their mission is to help ensure that appropriate practical and emotional support is available for all forms of CJD in the UK, and those at increased risk of CJD. They provide via a national helpline and support email service, supporting those in financial need through caring grants, linking those with similar experiences via their online community and in-person support meetings, and providing information to those who wish to learn more about CJD.

The CJD Support Network relies entirely on the kindness of our donors and fundraisers to continue their work, supporting families during the most challenging and isolating period of their lives.

Testimony from CJD Support Network members:

“We knew there were awful symptoms coming...at last we had a body of people we could go to. They’ve been marvellous to us, and still are.”

“It’s been so helpful to learn a lot more in detail about this awful and extremely rare disease, asking any questions we have, and through very sad circumstances meet other families who have unfortunately been through this too, but really understand and can share our experiences.”

Thank you for reading, any and all donations are extremely gratefully received..