Hello,

Thank you for visiting my just giving page, I’m running the London marathon 2024 (well attempting to!) for Helen and Douglas house. For everyone that knows me this is no simple task, I’m a over weight mid 30s man with no running experience so this is quite the challenge for me. But I’m doing this for my beautiful niece daisy, who we sadly lost. She was one of the strongest little girls I’ve ever met, everyday she gave it 110% so I will too training for this and doing the marathon. Helen and Douglas house was there for my sister Nicola and husband Scott when they needed some respite and at the end to provide a safe and peaceful place. I couldn’t thank them enough for everything they have done and continue to do for every child and young adult that visits.

I’m also going to complete this marathon in a costume.

I know times are tough but if you could spare a couple of pounds it will go along way and be fully appreciated

I’m also going to be blogging this on my tik tok page : canbarelyrunabath

Much love

Dan

Below is a story about daisy from my sister Nicola and Scott :

Daisy Dixon was born on 21st January 2012, 11 days early with an unknown syndrome. Daisy was also born with other problems...Jaundice, displastic kidney, dislocated hips and a floppy airway. Daisy was in NICU (Neo Intensive Care Unit) for 4 days and then in SCBU (Special Care Baby Unit) for 3 weeks. Daisy left hospital with a NG tube through her nose to her stomach to be fed because of her floppy airway, she couldn't take any milk orally. We had Daisy home for 3 weeks and then one night it all changed...

After her feed at 10pm on Friday 9th March 2012 Daisy aspirated on her feed and stopped breathing. Scott gave Daisy mouth to mouth and she came back. An ambulance was called straight away and then she spent 6 and a half hours in resus. They had difficulty getting a ventilation tube down her throat due to her small and floppy airway. Once she was stable she was transferred to John Radcliffe Hospital where she was in intensive care. Daisy spent 11 days on life support.

We got told Daisy now has severe brain damage through starvation of oxygen to the brain. To defy all odds Daisy kept breathing when she came off the life support. The night Daisy stopped breathing they said it was a stroke, possilbly caused by the condition Daisy was born with. On top of this Daisy now has cerebral palsy.

After coming off life support Daisy then spent a week in Stoke Mandeville Hospital before being transferred to Helen House Hospice. When we were at Helen House, me and Scott (my partner) could stay with Daisy and build our confidence back up to feeding Daisy through the NG tube again. While we were there the staff were amazing and looked after Daisy and us very well. Thanks to Helen House Hospice we have been given an opportunity to take Daisy there for respite.

Daisy was growing stronger everyday and showing us how well she was developing.

Helen and Douglas House was like a second home to us, Daisy loved being there as much as they loved her there! They provided us with respite every 6 weeks to re-charge, as Daisys care was 24 hours, 7 days a week. They made us feel very welcome as a family and supported us when times were hard.

We always said if there was anywhere we wanted Daisy to be when the time came, we wanted her to be in Helen House. They helped and tried everything they could to help us as a family.

Daisy showed us all how much she wanted to fight and how amazingly strong she was!

Daisy sadly passed away when she was 8 months old on 6th October 2012 in her sleep.

Daisy Marie Dixon born 21st January 2012, Passsed away 6th October 2012.