Story
Fletcher's diagnosis came nearly three years ago.
A pain no parent should have to go through.
Mitochondrial Disease rips it's way through my child's body daily. The pain the contortion of his muscles the falls. The confusion of why he is now ill. Please donate so we can help find a cure and hope for other families
I don't think there's anything that can prepare you for the devastating news of mitochondrial disease in just a moment your life has flipped and done a complete turn the life you imagined no longer exists in the way you dreamt. I can never put into words the way mitochondrial disease has changed our lives.
We joined the Lily Family group, which helped us realize we are not alone in this journey. There is hope—no matter how near or far that may seem. Together as "Team Fletcher," we are joining forces to help beat mito! We are participating in the London Landmarks Half Marathon on April 12th, 2026, with a target of raising £500 maybe more 🤞🙏 for The Lily Foundation.
Your support and funds go so far and do incredible things! Thank you for taking the time to read our story; we are forever grateful. Mitochondrial disease is a devastating condition that makes you grieve for a life for someone who's still here. The life we imagined our child living is no longer the one they'll lead. Many families share our experience or have unfortunately lost someone to mitochondrial disease.
Together, we need to fundraise as much as possible to invest in research that will help find a cure and give hope to all those affected by this disease. The Lily Foundation is the UK's leading charity dedicated to navigating the complexities of mitochondrial disease: today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.
Help me help us!
