Fletcher's diagnosis came nearly four years ago. Since then, we have started to come to terms with the devastating disease, but I cannot come to terms with everything it takes from us. What it takes away from Fletcher has stripped him of his independence and freedom, his mobility and confidence. Yet, Fletcher remains the most happy, kind, caring, funny, and absolutely incredible little boy. He loves fiercely and cares deeply for his whole family.

We joined the Lily Family group, which helped us realize we are not alone in this journey. There is hope—no matter how near or far that may seem. Together as "Team Fletcher," we are joining forces to help beat mito! We are participating in the London Landmarks Half Marathon on April 12th, 2026, with a target of raising £500 maybe more 🤞🙏 for The Lily Foundation.

Your support and funds go so far and do incredible things! Thank you for taking the time to read our story; we are forever grateful. Mitochondrial disease is a devastating condition that makes you grieve for a life for someone who's still here. The life we imagined our child living is no longer the one they'll lead. Many families share our experience or have unfortunately lost someone to mitochondrial disease.

Together, we need to fundraise as much as possible to invest in research that will help find a cure and give hope to all those affected by this disease. The Lily Foundation is the UK's leading charity dedicated to navigating the complexities of mitochondrial disease: today raising awareness of mito across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.

Help me help us!