Story
Running 9 Marathons in 61 Days for Ralph ๐
Iโm taking on a huge challenge โ running the equivalent of 9 marathons in just 61 days โ to raise money for DEBRA, in honour of my beautiful nephew, Ralph. ๐
Ralph is living with Junctional Epidermolysis Bullosa (JEB), a rare and incredibly painful genetic condition that causes the skin to blister and tear from even the slightest touch. EB can affect much more than the skin and everyday things that most of us take for granted like cuddles, winding and nappy changes can become painful and incredibly challenging.
Behind Ralph are his incredible parents, my sister in law Ciara and her finance Lewis, who face the daily challenges of EB while also navigating being first time parents. They have to pierce his blisters so they do not spread, manage wounds to prevent infection while spending hours changing his dressings. Despite all of this they show unbelievable strength, love and determination to such a wonderful little boy ๐ They are supported by DEBRA, who provide vital care, support and advocacy for families living with EB, while also funding pioneering research into treatments and, ultimately, cures.
Iโm running these miles for Ralph โ for every difficult day he has already faced, for his incredible parents and for the hope that one day children like Ralph wonโt have to live with the pain and limitations of EB.
Every single penny really does count. ๐
DEBRA is the UKโs largest funder of EB research and has invested more than ยฃ24 million into research, helping to drive forward the search for effective treatments and cures. Their research is essential, but it can only continue with the support of people like you.
So whether you can donate ยฃ5, ยฃ10, ยฃ20 or simply share this page, you will be helping make a difference to Ralph and to so many other families living with EB.
I know 9 marathons in 61 days is going to hurt โ but if even one mile I run can help bring us closer to a future where Ralph has less pain and more possibilities, it will be worth every step. ๐๐ผโโ๏ธ๐
Please help me #RunForRalph and support DEBRAโs fight to #FightEB.
Thank you from the bottom of our hearts. ๐
