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Remembering Sophia

Darragh Heskin is raising money for The Noah Jordan Foundation
In memory of Sophia

3 peaks of UK 24 hrs · 12 June 2026

As part of Sophia's legacy we are supporting The Noah Jordan Foundation to raise money to fund vital medical research towards treatments and a cure for Alpers Huttenlocher Syndrome. Please donate or take on your own challenge in Sophia's memory.

Story

Help us raise £100,000 to fund vital medical research towards treatments and a cure.

As part of Sophia’s legacy we are supporting ‘the Noah Jordan Foundation’, to raise £100,000 to fund vital medical research into Alper's Huttenlocher Syndrome, the disease that took Sophia’s life for which there is currently no treatments or cure.

This crucial medical research will be facilitated through a three-year PHD research fellowship under the guidance of the charities medical advisors.

By supporting our campaign and donating in Sophia’s memory, you are helping us raise vital funds to undertake this crucial medical research, with their guidance, as soon as possible.

Thank you for supporting Sophia’s legacy in the hope that other children don't have to suffer as she did in the future.

Natasha & Rob x

Donation summary

Total
£858.63
+ £25.00 Gift Aid
Online
£858.63
Offline
£0.00

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