Your friends are fundraising. Don't miss out, opt in.

Fundraiser complete

This page is now closed, but you can still donate to the cause directly

Grand Union Canal Race for Chasing Connor's Cure

Darren Pilbeam is raising money for Chasing Connor's Cure
In memory of Patricia and Pauline Moon
Donations cannot currently be made to this page

Grand Union Canal Race · 24 May 2025

Story

In February 2016, Connor Crawford was diagnosed with a form of Muscular Dystrophy called Duchenne. Duchenne is the number one generic killer in children worldwide. Until the day Connor was diagnosed, we had never heard of Duchenne.

Duchenne is seriously life-limiting; when Connor’s muscles grow, they will die, he’ll lose the ability to walk, talk, he will become totally paralysed and die – possibly by his early 20’s.

And the worse bit - today it has no cure.

So Chasing Connor's Cure has been created with one clear objective - to End Duchenne by raising vital funds and awareness to accelerate finding a cure to save Connor and boys like him.

Our Duchenne journey is filled with love and hope. We believe that we are stronger together and you are helping to make real-life changing differences – every penny raised is spent on vital research and trials to fund finding that magic cure. The silver bullet.

This is why I've decided to fundraise for Chasing Connor's Cure - to accelerate finding a cure.

We are forever grateful of any donation - you are helping us make a real difference; thank you.

Donation summary

Total
£2,715.00
+ £605.00 Gift Aid
Online
£2,715.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees