My partner Linda was diagnosed with Progressive Supranuclear Palsy (PSP) in April 2021 after over a year of incorrect suggestions. The pandemic hindered face-to-face appointments, which further complicated the situation and before the diagnosis we had endured more than two years of medical uncertainty.

Throughout this period, I have had to take on the role of Linda's 24/7 full-time carer, which has been incredibly challenging and it's a responsibility I never anticipated undertaking.

As Linda and I were both grappling with the situation, we were introduced to the PSP Association (PSPA) who are the only UK charity dedicated to improving the lives of people living with PSP and Corticobasal Degeneration (CBD). The Charity provide information and support for people affected by PSP & CBD whilst funding research into the causes, treatment, and eventually a cure.

Over the summer, PSPA has planned a series of fundraising events, including an Awareness Week. People have also been encouraged to complete a 5km "Walk of Hope" at some point between June 17th and August 31st, but I've decided to walk this distance on each of the 75 days, totalling 375km - plus I'll add an additional 25km to reach 400km, which is the equivalent of walking from our house in Bicester, Oxfordshire to Land’s End (according to Google Maps)! 

My goal during this period is to raise awareness and essential funds for PSPA. However, I don't want to walk alone each day, so I invite anyone who can make it to Bicester to join me during the final week of this endeavour and I will share details and timings in advance.

Your participation, whether as a fellow walker or as a generous donor, will directly contribute to providing support, raising awareness, and funding research to find a cure for PSP and together we can bring hope and relief to those affected by this debilitating disease. 

With my sincere and heartfelt thanks.