David's Alaskan fundraiser for Foundation for Prader-Willi Research UK
Fundraising for Foundation for Prader-Willi Research UK
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My 4 year old daughter Robyn, was born with a complex and challenging condition called Prader Willi Syndrome (PWS). PWS is a rare condition affecting approximately 1:15,000. We badly need more treatments for this condition so Robyn can live a full life.
During the month of July I will be taking part in a wilderness canoe expedition of the Sheenjek with my father, Rae Jack. It will just be the two of us (unguided) and we will spend approximately two and a half weeks on the river. There is every chance we won't see another soul during this time. I'm using this trip as an opportunity to raise awareness about PWS and money for a charity close to my heart. ALL donations will go to the Foundation for Prader Willi Research and not one penny will be used to fund my trip.
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