David Jack

David's Alaskan fundraiser for Foundation for Prader-Willi Research UK

Fundraising for Foundation for Prader-Willi Research UK
£1,925
raised of £1,000 target
by 58 supporters
Donations cannot currently be made to this page
Canoe Expedition in Alaska , 6 July 2023
Foundation for Prader-Willi Research UK

Verified by JustGiving

RCN 1141923
We fund research in Prader-Willi Syndrome to give hope for a brighter future

Story

Thanks for taking the time to visit my JustGiving page.

My 4 year old daughter Robyn, was born with a complex and challenging condition called Prader Willi Syndrome (PWS). PWS is a rare condition affecting approximately 1:15,000. We badly need more treatments for this condition so Robyn can live a full life.

During the month of July I will be taking part in a wilderness canoe expedition of the Sheenjek with my father, Rae Jack. It will just be the two of us (unguided) and we will spend approximately two and a half weeks on the river. There is every chance we won't see another soul during this time. I'm using this trip as an opportunity to raise awareness about PWS and money for a charity close to my heart. ALL donations will go to the Foundation for Prader Willi Research and not one penny will be used to fund my trip.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

About the charity

Foundation for Prader-Willi Research UK

Verified by JustGiving

RCN 1141923
The mission of Foundation for Prader-Willi Research UK (FPWR UK) is to eliminate the challenges of Prader-Willi Syndrome through the advancement of research. High quality research will lead to more effective treatments and an eventual cure for this disorder. FPWR UK was founded in 2010 by parents of children with Prader-Willi Syndrome.

Donation summary

Total raised
£1,925.00
+ £401.25 Gift Aid
Online donations
£1,925.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.