Shaun Middleton, Howard Smith and myself are embarking on this epic challenge to raise funds for the AT Society.

The cause:

This is an incredibly worthy cause and a very personal one for my family. In December 2018 our son Rhys, who is now 7 years old was diagnosed with AT. Ataxia Telangiectasia (AT) is a rare genetic life-limiting disease for which no effective treatment currently exists. The symptoms include lack of balance, slurred speech, a higher susceptibility to cancer and more than normal infections.

The AT Society helps people living with AT by providing invaluable support from dealing with the shock of the initial diagnosis through to treatment and the challenges of everyday living, they provide support, advice and advocacy for people with AT and their family, friends and carers. They also liaise with and offer advice to professionals and fund research to find treatments and a cure.

With leaps being made in understanding rare and complex genetic conditions there is cause for optimism that treatments and ultimately a cure are within reach. Every penny raised will help towards reaching these goals.

The challenge:

We'll be setting off from London on Sunday 3rd September and on Day 1 we'll cycle the 85 miles to Dover. On Day 2 we'll kayak across the English Channel from Dover to Calais. From Day 3 to Day 5 we'll cycle the circa 200 miles from Calais to Paris.

Thank you for taking the time to visit our page. If you can please donate and help us to overcome this cruel condition!