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Dion's fundraiser for Nerve Tumours UK

Dion Carhart is raising money for Nerve Tumours UK

Run Plymouth Half Marathon 2026 · 17 May 2026 ·

Nerve Tumours UK Verified by JustGiving
RCN 1078790 (England & Wales), SC045051 (Scotland)
We are the UK’s Voice for NF (NF1, NF2 & SWN) 💙 Support & Empowerment 🤝 Helpline & Resources 📞 Raising Awareness 🗣👥👥 Fundraising & Campaigning 🏃‍♀️📣🚴‍♂️ #NFSupport #MakeNFVisible #NFStrong 💪

Story

I’m running the Plymouth Half Marathon for Nerve Tumours UK—supporting those living with the most common genetic disorder you’ve probably never heard of.

​Nerve tumours (Neurofibromatosis) are life-altering and unpredictable. Despite how common they are, many doctors remain unaware of the condition. I know this firsthand; I live with nerve tumours myself, and for a long time, I felt unheard and completely dismissed by the medical community.

​Nerve Tumours UK was the only organization that truly listened when no one else would. They provide the vital support and specialized knowledge that patients desperately need.

Running for My Niece

​Most importantly, I am running for my brave niece. She is currently fighting a large, inoperable plexiform tumour in her arm. and taking Koselugo to stabilise the tumour which has its own complications, Watching her navigate the condition that has no cure is my ultimate motivation. If she can face that every day, I can certainly tackle 13.1 miles.

​How Your Donation Helps..

​Because this condition is so often overlooked, funding is scarce.

Your support helps:

​Provide Specialist Nurses for families in crisis.

​Train GPs to recognize and treat the condition early.

​Fund Research into treatments for inoperable tumours.

​Please help me turn the "disorder nobody knows" into a cause nobody can ignore. Every pound counts.

​Thank you for your support!

Donation summary

Total
£120.00
+ £28.75 Gift Aid
Online
£120.00
Offline
£0.00

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