Donna Hunt

Donna's fundraiser for Reverse Rett

Fundraising for Reverse Rett
£6,884
raised of £1,500 target
by 187 supporters
North Norfolk coastal path walk , 22 September 2023
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thank you to Everyone who takes the time to Donate

Our Beautiful princess Danni is 26 & has a condition called Rett syndrome. A brief story of Retts syndrome & Dannis life Diagnosed at 5 years old . The worst Day of our lives . Loss of speech , sezuires, Hyperventilating, Never knew us as parents would feel so alone as we didn't know of any other family . Danni went to a lovely special needs school at The Hall School, but not what you want for your child . As a parent you think life will get better as she gets older how naive was I.Things got worse, sezuires got worse, Eplipsey made an appearance & that was a scary time. Anexity, prolonged QT of the Heart , mobility, Non verbal but through all of this Danni smiles through her eyes even through the bad times. So this walk every single step & every penny we raise is worth those miles. Also 2day we learned of the second patient taking part in the Gene therapy. The Reverse Rett. The light for so many & our Girls Deserve that cure .Thank you again for reading and Donations.

QUOTE IS WE BELIEVE & WE HOPE 💜

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£6,883.48
+ £935.96 Gift Aid
Online donations
£6,280.48
Offline donations
£603.00

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