Donna's fundraiser for Reverse Rett
Fundraising for Reverse Rett
Verified by JustGiving
Thank you to Everyone who takes the time to Donate
Our Beautiful princess Danni is 26 & has a condition called Rett syndrome. A brief story of Retts syndrome & Dannis life Diagnosed at 5 years old . The worst Day of our lives . Loss of speech , sezuires, Hyperventilating, Never knew us as parents would feel so alone as we didn't know of any other family . Danni went to a lovely special needs school at The Hall School, but not what you want for your child . As a parent you think life will get better as she gets older how naive was I.Things got worse, sezuires got worse, Eplipsey made an appearance & that was a scary time. Anexity, prolonged QT of the Heart , mobility, Non verbal but through all of this Danni smiles through her eyes even through the bad times. So this walk every single step & every penny we raise is worth those miles. Also 2day we learned of the second patient taking part in the Gene therapy. The Reverse Rett. The light for so many & our Girls Deserve that cure .Thank you again for reading and Donations.
QUOTE IS WE BELIEVE & WE HOPE 💜