Every other day in the UK, a baby is born who may develop serious mitochondrial disease. The Lily Foundation was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mito at just 8 months old. Finding little information or support to help her, Liz set out to provide answers for herself and others in her situation. The charity exists today to support affected patients and families, raise awareness of this little-known but incurable genetic condition and fund research into treatments and an eventual cure.

I am cycling solo from lands end to john o groats in 10 days to help raise money for the lily foundation and in memory of beautiful Hector Howlett who was sadly taken from us way too young but will forever be in all our hearts,he will be helping me through every single mile of this challenge and it will be such an honour to do it in his memory when i cross that line at john o groats on day 10,so please help me on this journey of roughly 100 miles per day and raise some money for this wonderful charity.

Duane