I have Hypermobility Ehlers-Danlos syndrome, which is a connective tissue disorder that cause me chronic pain and fatigue, among other things. However, I still enjoy be active and doing things like going on walks (with my braces of course!). I am trying to owalwalk at least 25 miles this month in order to raise money that will fund research for EDS.

Every May, people all over the world show their support for people who have a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD). Our shared mission is important throughout the year, but May is a time we all come together, share experiences, and highlight what is needed to progress change!

The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in EDS and HSD. Many around the world face a diagnostic odyssey: years, sometimes lifetimes, fighting for recognition, diagnosis, and care. We are working to create a world in which each person living with EDS or HSD has the right treatment and care at the right time for their specific needs.