Thank you for being here and for helping us build a legacy together!

By arriving at this page, you have already become part of a global campaign launched by ACTA2 Alliance for MSMDS Day on June 10th: Building A Legacy Together.

A movement created by families like ourselves who are trying to give our children living with Multisystemic Smooth Muscle Dysfunction Syndrome (MSMDS) a better future.

MSMDS is an ultra rare genetic condition with high risk of strokes and aortic dissections from a very young age. That's why in this race against time, families around the world are coming together during June to help push research forward faster.

One of the projects currently being supported is the Natural History Study taking place in Boston, an essential step towards future gene therapy studies and other treatments that researchers hope may begin reaching children within the next two years.

In Scotland, Qué Pupilas Más Grandes Tienes — the Spanish association our family created after our daughter became the first child diagnosed with MSMDS in the country — is organizing a series of small community events to help raise funds for this research.

If you are reading this today, there is a good chance you may already be supporting the cause by attending one of those events right now.

Whether through a literary contest, homemade postcards, a community gathering, a coffee, or simply sharing this story with others, every small gesture helps families feel less alone and helps research move one step closer.

So thank you again for being here. Any support you give us truly makes a difference.

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Funds raised through this page in the UK will support ACTA2 Alliance UK as part of the wider international research effort led by ACTA2 Alliance.

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Follow @quepupilas on Facebook & Instagram to know more about Multisystemic Smooth Muscle Dysfunction Syndrome and the families dealing with it daily.

¡THANK YOU!