The Butterfly Run, an accessible event organised by Cure EB, is taking place on Sunday 22nd September at the Queen Elizabeth Olympic Park in London. Happening right at the end of World Mitochondrial Disease Week, it’s a great opportunity to shine a spotlight on rare diseases including Mitochondrial Disease.

Mitochondrial disorders affect people in multiple ways, depending on which cells are affected. This can make the condition hard to diagnose, as mitochondrial disease symptoms often resemble those of other serious illnesses. For example, a person with mito disease may suffer from seizures, fatigue, vision and hearing loss, cognitive disabilities, respiratory problems or poor growth. Any of the body’s organs and systems can be affected including the brain, heart, lungs, gut, liver and skin.

There is currently no cure for mitochondrial disorders, but The Lily Foundation are working hard to change that and I want to help them so please please donate if you can.