This year it’s my fiftieth birthday and my fifth year of being disabled by Long Covid.

There are no treatments for Long Covid and the similar illness ME/CFS. The research prospect that gives me the most hope is SequenceME, a project of the University of Edinburgh, Oxford Nanopore Technology and the European Bioinformatics Institute, with Action for ME. It will be the world’s largest ‘long-read’ whole-genome study of any disease, identifying biological mechanisms and pointing towards treatments.

Phase 1 of SequenceME will cost £388,138 and they are close to that target now. Can we get them closer?

Read more about SequenceME:

https://www.actionforme.org.uk/sequence-me-long-covid-launches/

https://megenetics.org.uk/our-projects/sequence-me-long-covid/