Story
Thank you for visiting my JustGiving page supporting the MND Association. I'm not actually taking part in the Bath 50 Ultra Marathon with the rest of my family because my wheelchair doesn't have the range. Instead my husband and I will be tackling the much harder challenge of persuading our 18-month old twins to complete our local junior park run for the first time. Don't worry, we're not expecting them to walk all 2km, we're bringing the buggy! I'll be happy if we all cross the finish line and no one's crying.
I have MND and it's changed my life completely. The first photo is me playing frisbee in June 2023, blissfully unaware of what's to come, the other was taken at Christmas 2025, no longer able to live independently. The crazy thing is I'm actually very lucky to be progressing as slowly as I am. Statistically, half the people diagnosed at the same time as me are already dead.
It's a mystery why I have MND as, like 90% of sufferers, I have no genetic risk factors and other causes are unknown. What we do know is MND affects 1 in 300 people in the UK, of all backgrounds, ages, genders and there is no cure. By funding research, we can understand this disease and hopefully stop people dying from it
