Thank you for visiting my JustGiving page supporting the MND Association.

I’m raising money for MNDA in honor of my dad, who is courageously battling with Motor neuron disease & Frontal temporal dementia which are both rare degenerative diseases.

Motor neurone disease (MND) is a fatal, rapidly progressing neurological condition affecting more than 5,000 adults in the UK at any one time. The disease causes messages from nerves (motor neurones) in the brain and spinal cord that control movement to gradually stop reaching the muscles, leading them to weaken, stiffen and waste. The result is that people become locked in a failing body, unable to move, talk and eventually breathe. Some may experience changes in thinking and behaviour, with a proportion experiencing a rare form of dementia.

MND kills 1/3 of people within a year and more than 1/2 within two years of diagnosis. It affects people from all backgrounds and a person’s lifetime risk of developing MND around 1 in 300.

Today 6 people will be diagnosed and 6 will die from MND. There is no cure.

As motor neurone disease is not common, general health and social care professionals may not see many cases. This means it is important to seek out specialists who have appropriate experience in its treatment and care – usually with referral to neurological services. Due to the early signs of the disease being so varied, many people can usually take years to get diagnosed, the same happened to my dad despite him being so strong and not giving up every time he was told nothing was wrong.

My dad was a very healthy active man with no previous health conditions but in the space of a year he has gone from riding motorbikes around mountains in Nepal and going to the gym daily, to living in a care home unable to speak, eat & barely move.

About 1 in 10 people diagnosed with MND have a family history of the condition, known as inherited MND, this is the case for our family & I had to undergo genetic testing myself as there is a 50% carrier risk.

MNDA was my charity of choice as they have helped us through some tough points as a family. It’s also so important to help fund research, improve care and provide support for people living with and affected by MND.

If you have got to this point, thank you so much for taking the time to read this. I would kindly appreciate any donations, every penny counts.

We must find a cure for future generations.