EDS and HSD Awareness Month 2025

EDS Awareness Month Walk and Roll Challenge
This May, I’m joining a global movement to raise awareness and support for people living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
While these conditions affect people every day, May is our time to come together—to celebrate our incredible community, share our stories, and push for the change we urgently need.
I live with hypermobile EDS, a condition that affects me every moment of every day. Despite how deeply it impacts so many lives, there’s still so much we don’t understand—more research is needed, more awareness is needed, and more action is needed.
That’s why I’ve set myself a challenge: I’m running, walking, and cycling 100 miles this May to raise funds and awareness for EDS and HSD. Every mile is a step toward greater understanding and support for our community.
Please consider supporting my journey—whether by donating, sharing, or cheering me on. Any support you can give will help raise awareness, fund vital research, and shine a light on a condition that desperately needs more understanding. Together, we can make a difference.
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