Emily McIntosh

Fundraising for SUDEP Action in memory of Hannah

Fundraising for SUDEP Action
raised of £500 target
A series of runs, sunrise and sunset walks across Edinburgh, including places that Hannah knew and loved.
In memory of Hannah
SUDEP Action

Verified by JustGiving

RCN 1164250 (England & Wales) SC047223 (Scotland)
We raise SUDEP & epilepsy risks awareness to prevent deaths & support those bereaved


As you know, last year we lost our beautiful, Hannah. Hannah was one of those incredibly rare people in life who make you feel special, heard, understood and loved. Many people have talked about her beautiful energy, kindness and openness, which disarmed you to make you feel you could wholly be yourself. She had the most infectious laugh and a wonderful zest for life. When deliberating on a tough decision or trying to make a plan, we often say 'Be More Hannah', she made moments special and made life count.

Since last March, we have taken time as a family to digest the information we received from the coroner’s report, which concluded that SUDEP was the cause of death. SUDEP is defined as Sudden Unexpected Death in Epilepsy. It refers to deaths in people with epilepsy that are not from injury or other known causes and by its very nature is unexplained.

Tragically, epilepsy-related deaths are a major public health problem in the UK and in Australia and many are potentially avoidable. According to research carried out in 2021, mortality ratios increase significantly in young adults between the ages of 16 to 54.

SUDEP Action is a charity dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including SUDEP. A key element of their work is supporting research through the Epilepsy Deaths Register “making every epilepsy death count”.

This summer, we have decided to begin our support for this vital charity by undertaking a series of fundraisers including a 10k run, 3 sponsored swims and sunrise and sunset walks across places in Edinburgh that Hannah knew and loved.

Thank you for your support of this little known but essential charity.

Much love,

Hannah's family


About the charity

SUDEP Action

Verified by JustGiving

RCN 1164250 (England & Wales) SC047223 (Scotland)
At least 21 people with epilepsy in the UK die each week. SUDEP Action, is the only UK charity dedicated to supporting those bereaved by epilepsy, raising awareness of epilepsy risks and tackling deaths in people with epilepsy, including Sudden Unexpected Death in Epilepsy (SUDEP).

Donation summary

Total raised
+ £645.50 Gift Aid
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Offline donations

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