May is the official awareness month for Neurofibromatosis (NF) and we want to help share awareness and raise funds for Nerve Tumours UK to support those affected by NF.

Our daughter Evie (4) was recently diagnosed with NF1 which was passed down from her dad Nathan who also has the condition. There is a 50/50 chance of passing down but the condition can also be spontaneous which is how he has it.

Emily and Riley (7) will be doing 5k a day for 26 days in May for the 26,500 people diagnosed with NF1 in the UK.

There is no cure for NF, but it makes massive difference to a person's quality of life if they are provided with adequate and effective support and care, from birth onwards.

It’s a cause very close to our hearts and every little helps.