Unique is a supportive community for people who are looking to learn, share lived experiences and connect with others whose life has been touched by rare chromosome or gene disorders.

I am creating this fundraiser to help provide the resources my daughter needs along her journey. The funds raised will go towards raising awareness of rare disorders, therapy, developmental support, specialist equipment, travel to medical appointments to give her the best opportunity as she grows.

As parents, we want to give Lyla every opportunity to thrive, reach her potential, and enjoy the best quality of life possible. This diagnosis has brought many uncertainties, as well as the need for medical care, physio, equipment and the unfortunate waiting times.

Our daughter is so much more than her diagnosis. She is loved unconditionally and is the biggest ray of sunshine. We are determined to give her the best possible future with every donation, no matter the size. It will make a meaningful difference.

I'm supporting their mission to raise £34,000 for Rare Chromo Day 2026