Our beautiful little girl Charlotte- faith, was diagnosed with sma type 3 in January and we will now be doing a fundraiser to help raise awareness about this rare genetic disease.

Established for over 40 years, SMA UK are a charity that supports, campaigns and advocates so that everyone affected by Spinal Muscular Atrophy can access the best care, services and treatments, and benefit from continued research. We offer adults, young people, parents, relatives and friends emotional support, practical advice and guidance from our experienced team and provide reliable health and social care information about SMA. We also provide and distribute free multisensory toy packs for infants who are diagnosed with SMA.