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Ben Nevis climb to raise awareness for Cavernoma Alliance UK

Emma Hopkins is raising money for Cavernoma Alliance UK

Ben Nevis Climb For Emmy-Lou · 25 September 2026

Cavernoma Alliance UK (CAUK) supports everyone affected by cavernoma. A cavernoma is a cluster of abnormal blood vessels in the brain or spine. It is more common than many realise yet often unheard of. Our mission is to find a cure and to improve lives through support, information and research.

Story

🏔️ BEN NEVIS — WE’RE DOING IT AGAIN! 🥾💙

After climbing Snowdon and Scafell Pike to raise awareness and money for Cavernoma Alliance UK - CAUK, we honestly thought we’d never want to see a rock again… 😂 But somehow we’ve agreed to take on Ben Nevis!

This time it’s Helen, Vikki, Stevie, Emma and Soph — and after tackling Snowdon and Scafell together, we’ve decided we’re going for the big one! 🏔️🥾❤️ we head to Scotland 24th September 2026

For those who don’t know, we’re doing this because of Emmylou 💙

Our daughter Emmylou lives with multiple cavernoma syndrome (FCCM) a rare brain condition that can have a huge impact on her life and on our whole family. Multiple cavernoma syndrome is something many people have never even heard of, which is why raising awareness means so much to us.

I know we’ve asked for donations before, and we really do appreciate every single person who has supported us. So we don’t want this to feel like another “please give us money” post.

This time, our biggest hope is simply to raise awareness. 🙏

If sharing this helps even one person learn about Cavernoma’s, recognise that they’re not alone, or find Cavernoma Alliance UK - CAUK for support and information, then every step up that mountain will be worth it.

And if anyone would like to support Cavernoma Alliance UK you can donate directly to the charity. There is absolutely no pressure — sharing this post and helping us spread the word means just as much. 💙

So here we go…

Me, Vikki, Stevie, Emma & Soph — Ben Nevis, we’re coming for you! 🏔️🥾😂

For Emmy Lou. 💙

For cavernoma awareness.

For everyone affected by this condition.

Please share and help us spread the word. ❤️

#CavernomaallianceUK

#CAUK

#CavernomaAwareness

#BenNevis #ForEmmyLou #RaiseAwareness #EveryStepCounts

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