Emma Hughes

Emma's fundraiser for Duchenne UK

Fundraising for Duchenne UK
£1,226
raised of £700 target
by 36 supporters
Donations cannot currently be made to this page
Hiking Kilimanjaro , 13 July 2023
Elliot's Endeavours to End Duchenne is a Family & Friends Fund supporting Duchenne UK

Story

Elliot's Endeavours to End Duchenne supports Duchenne UK a charity that has one clear aim to end Duchenne muscular dystrophy (DMD).

DMD is a devastating muscle-wasting disease. It is the most common and severe form of muscular dystrophy. Diagnosed in childhood, it mainly affects boys. Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development.

When I met Elliot, as my little boys best friend, I was struck by his beautiful warm smile and gentle nature. When I learned that Elliot had Duchenne I felt so sad and powerless to help.

DMD is a relentless and cruel disease which has no mercy. Stealing young lives and leaving loved ones broken.

However, a surge of new therapeutics are giving hope. Raising money allows this research to advance, giving a better chance that a treatment might be found that would be suitable for Elliot.

On July 3rd 2023 I will fly to Tanzania to start a 7 day trek up Mt. Kilimanjaro - at 5895m it is a hard climb due to the altitude symptoms as you get above 3000m. I will be doing this climb to raise money for Elliot's endeavours and would really appreciate your support.

All monies raised will go directly to Elliot's endeavours.

About the campaign

Elliot's Endeavours to End Duchenne is a Family & Friends Fund supporting Duchenne UK

About the charity

Duchenne UK

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RCN 1147094
As the leading Duchenne muscular dystrophy (DMD) charity in the UK, we want to find effective treatments for DMD and end its devastating impact. We’re going further than anyone has before, and we’re doing it faster, because this generation of people living with DMD can’t wait.

Donation summary

Total raised
£1,225.08
+ £193.75 Gift Aid
Online donations
£1,225.08
Offline donations
£0.00

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