Your friends are fundraising. Don't miss out, opt in.

Emma & Tom's fundraiser for rare people - the research charity

Emma Hutchinson is raising money for rare people - the research charity

The Altra Brighton Half Marathon 2026 · 1 March 2026 ·

Rare People – The Research Charity brings hope to those affected by rare genetic neurodevelopmental conditions — illnesses so uncommon that most are told there’s no chance of a treatment. The first of many studies we will fund, is looking at a potential treatment for DeSanto-Shinawi Syndrome

Story

Thanks for taking the time to visit my JustGiving page.

Emma and her husband Tom are running the Brighton Half Marathon to support Rare People, a charity that’s very close to their hearts. Rare diseases affect millions, yet many families feel unseen and unsupported. By taking on this challenge, they hope to raise funds and awareness to help Rare People continue their vital work supporting those living with rare conditions. Any donation, big or small, truly means the world to them — thank you so much for your support 💙

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£1,070.76
+ £242.50 Gift Aid
Online
£1,070.76
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees