On the 23rd of December 2024 our beautiful girl Erin sadly lost her lifelong battle with Rett Syndrome at the tender age of 15. Despite Erin facing challenges with ordinary everyday tasks such as talking, walking and even feeding herself, she was the most amazing little girl who loved life and never let Rett Syndrome stop her smiling and bringing joy to all who knew her.

Erin should have been celebrating her Sweet 16th this year with her beautiful smile and the most amazing party as she loved music, so in her memory and honour we are as a family celebrating her 16th birthday with a fundraising ball to give back.

Erin’s 16th Birthday Ball, is a charity fundraising event being held on the 13th of September 2025 at Kennoway Bowling Club in aid of Reverse Rett.

The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.

Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.