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Estelle's fundraiser for Fowler's Syndrome UK

Estelle Wingham is raising money for Fowler's Syndrome UK

London to Brighton Bike Ride June 2026 · 21 June 2026 · Start fundraising for this event

Fowler’s Syndrome UK is a registered charity (1196903) that works to raise awareness, promote education and increase research into Fowler’s Syndrome, with the aim of reducing diagnosis time and improving patient care nationwide.

Story

Thanks for taking the time to visit my JustGiving page.

My Journey to the Finish Line

When I signed up for this I didn't even have a bike! And I can't even remember the last time I got on a bike! So the idea filled me with dread! However, I had one reason why I decided to do this, for my daughter.

Fowler's syndrome is a very rare condition most people have never heard of, even doctors—but for the women living with it, it's an invisible weight they carry every single day. It affects the bladder's ability to empty properly, causing chronic urinary retention, pain, and a cascade of complications that can upend careers, relationships, and the simple freedoms most of us take for granted. Imagine planning every outing around whether you'll have access to a catheter. Imagine the exhaustion of explaining an "invisible" illness to doctors, employers, and loved ones who can't see your struggle.

Every hill I climb, every mile I push through, I carry with me the stories of women whose own journeys are far more challenging than any route I could ride.

These women don't get to choose an easier path. They don't get to stop when it hurts.

So neither will I.

Every donation fuels research, raises awareness, and tells someone with Fowler's syndrome: You are not alone. You are seen. And we're fighting for you.

I'm asking you to join me—not on the bike, but on the mission. Whatever you can give brings us closer to better treatments, faster diagnoses, and a future where no woman has to navigate this condition without support.

Will you ride alongside me?

https://fowlerssyndrome.co.uk/

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Donation summary

Total
£1,430.00
Online
£430.00
Offline
£1,000.00

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