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Thanks for taking the time to visit my JustGiving page.
On Saturday 25th of March at 10am, head on over to twitch.tv/rabbidkillar93 take part in the stream!
Nicolaides-Baraitser Syndrome (NCBRS) is a rare genetic condition that is present at birth, is usually recognized during childhood, and can affect anyone. NCBRS does not discriminate. It is known to occur in both males and females, and in every culture. Currently there are fewer than 270 confirmed cases worldwide.
The NCBRS Worldwide Foundation is a non-profit organization that aims to support and educate families, carers and professionals who work with them. Together we will work to promote awareness and understanding of the syndrome. We will advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments.
As someone with a sibling with NCBRS, this charity means a whole lot to me.