James O'Kane

Pulmonary Fibrosis - Every Breath Matters

Fundraising for Pulmonary Fibrosis NI
raised of £150,000 target
by 109 supporters
Donations cannot currently be made to this page
Charity Golf Day2023, 30 June 2023
Pulmonary Fibrosis NI

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RCN HMRC Registered
We provide support in Northern Ireland to pulmonary fibrosis sufferers and carers


Although there is little public awareness of Pulmonary Fibrosis, every community has people who are suffering and dying from this disease. NI has the highest prevalence of Pulmonary Fibrosis sufferers in the UK, with around 360 newly diagnosed patients a year. Mid Ulster has a particularly high prevalence. On diagnosis their life expectancy is between 3 and 5 years.

Our aim is to raise awareness and much needed funding, to provide help and support for patients and families by providing a much needed respite centre. Pulmonary Fibrosis NI, a registered charity, is a support group which has been set up to provide support and respite to sufferers and their families. The charity enjoys cross community and cross party support.

Dr Josef Kuriacose, a popular and well known medical practitioner from Magherafelt, sadly passed away on 15th April 2022 from Pulmonary Fibrosis.

As part of this fundraising campaign, a small group, who were friends of Dr Josef, and other recently deceased members of our community, have been approaching local businesses and individuals for financial contributions.

There will also be a one off marquee charity golf event on the 30th June at Killymoon Golf Club where Dr Josef was captain for 2 years during Covid. The total amount raised through this fundraising campaign will enable the charity to secure or build a respite centre. This facility is much needed as patients are unable to travel abroad due to oxygen requirements. It is hoped that all the sports clubs and their members throughout N.I and especially Mid-Ulster will give financial support to this very deserving cause.

With your help we can achieve this target, and give sufferers and their families from within all our communities the support and respite they so badly need and deserve.

Every contribution, however small, will count.

Every breath matters.

About the charity

Pulmonary Fibrosis NI

Verified by JustGiving

RCN HMRC Registered
CARING-SHARING-SUPPORTING Patients and Carers in Northern Ireland; Pulmonary Fibrosis is a terminal condition and Idiopathic Pulmonary Fibrosis has no known cause or cure. We at The Northern Trust Pulmonary Fibrosis Support Group (NTPFSG) are here to provide support to sufferers of pulmonary fibrosis and their families from all across Northern Ireland; working to improve their quality of life. We provide practical support with day to day living. We help raise awareness and support research into improved outcomes and greater understanding of pulmonary fibrosis. We also provide a supportive place to come together to chat and socialise with a community that understands what it is like to live with pulmonary fibrosis. We have Ambassadors all across Northern Ireland who link with and assist their local pulmonary fibrosis community. We are a not for profit charity who have appointed Directors who give up their time freely and work collectively for the betterment of all pulmonary sufferers in Northern Ireland. Our President is Dr Eoin Murtagh (Respiratory Consultant) Antrim Area Hospital) and our Patron is Mrs Julie Hesmondhalgh The NTPFSG is involved with our politicians on the all party working group for lung health in Northern Ireland. We have contact with our Respiratory medical teams across the Health and Social Care Trusts to ensure that they are aware of the services we provide to sufferers and their families. If you feel we could help you then please contact us.

Donation summary

Total raised
+ £3,531.25 Gift Aid
Online donations
Offline donations

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