Thank you for visiting my JustGiving page! 💙

this page / fundraiser has been created to help raise awareness and support people (like myself) with ME / CFS.

My story:

My name is Evie and I was diagnosed with ME / CFS in March 2020 at 18 years old , on a daily basis since my diagnosis I still struggle with a lot of symptoms such as overwhelming fatigue (that is not improved by rest) , difficulties with my speech, memory and concentration , headaches , dizziness and severe pain in my legs / feet (the list continues).

To manage this condition I’ve had to undergo many pacing / energy workshops and change many aspects of my life including : my daily routine , sleeping habits and diet.

I have also had countless appointments for hearing tests , scans , and blood tests - unfortunately, all of my past test results have came back with nothing to show/ be concerned about - making my condition and my symptoms invisible to others.

as my symptoms can be invisible to those who don't frequently spend time with me - it is more than often /likely that I’m not taken seriously by doctors and members of the public , which really upsets me especially when I am wanting support or advice.

since my diagnosis , many opportunities have been stripped away from me , such as : making new friends , jobs and trying new hobbies - this is because my symptoms can be so severe that I cannot leave my house or bed.

Unfortunately , there is no cure for ME/CFS and despite my best efforts this illness could last my entire life but with your help with donations and sharing this fundraiser - ME Association , can do the following :

• invest in biomedical research

• support sufferers and their families

• give more up to date information / advice to ongoing and new patients

May 12th is international ME / CFS awareness day - to show your support , please leave a 💙 (blue heart) below.

If you have any questions that you’d like to ask , please don’t hesitate ☺️

thank you for continued support 💙