Story
Primary Ciliary Dyskinesia (PCD) research is incredibly important because it helps doctors improve diagnosis, develop better treatments, and understand the long-term impact of the condition so people like me can live healthier, more supported lives. As a 15-year-old who was diagnosed much later than many others, I’ve had to deal with years of symptoms without answers, and even now it can be tough trying to keep up with daily routines, treatments, and everything that PCD brings. But one thing that inspires me is how strong and determined the PCD community is—we all push through our challenges and try to keep living our passions, no matter what. For me, that passion is car racing, and even with PCD, I spend the whole year travelling around the UK to compete because it’s something that makes me feel alive and confident. Research gives me hope that one day managing PCD will be easier, that others won’t have to wait so long for a diagnosis, and that future generations will have the support they need right from the start.
