🔥Thanks for your support of The Firewalk for PC 2026!🔥

Both my husband, Tom, and my son, Tim, have Pachyonychia Congenita (PC), an ultra rare and ultra painful skin condition.

PC causes them to get blisters on the soles of their feet, which are then covered in hard calluses (see photos below and in gallery)!

This means that a simple thing like walking hurts and people with PC experience pain every single day of their lives.

There are less than 1300 people in the world genetically confirmed to have PC and only 5 in Wales!

Currently, there is NO cure for PC and little effective treatments.

The PC Project Charity is a very small charity working hard to find treatments to stop the pain. They have been invaluable to us and other patients as we try to navigate this rare and painful disease.

All funds raised from the Firewalk will go directly to them.

The Firewalk will take place on Saturday April 18th, at Mumbles Cricket Club, Swansea. It will be a lively event with a BBQ and celebrations afterwards so please come out and support us on the day as well!!

As part of a family affected by PC, thank you from the bottom of my heart.

Julie

More about the charity:

Pachyonychia Congenita (PC) Project Europe unites patients, families, physicians, and researchers in a collaborative effort to end the physical and emotional pain of PC, a rare genetic skin disease that makes walking difficult and sometimes impossible.

Your support with help us give a diagnosis to patients, usually after years of them searching for answers, provide individual and community support to patients and their families, and most of all, fund vital and targeted research to find treatments and ultimately a cure for these patients who feel pain every day.