Charlie (age 9) and I are taking on Snowdon on the PYG trail approx 11km of steep walking, climbing and scrambling up to the top starting at 02:30am to raise vital funds and shine a light on the families living with rare diseases.

Behind every rare disease diagnosis is a family facing uncertainty, challenges and often a long journey to find the right support. We’re climbing Snowdon to stand alongside these families and help make that journey a little less lonely.

Every step, every sore muscle and every donation will help provide hope, support and a brighter future for families affected by rare disease.

Please support our challenge and help us make every step count. ❤️