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Freddie's fundraiser for Williams Syndrome Foundation

Robson Kirk is raising money for Williams Syndrome Foundation
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London Summer Walk 2025 · 23 August 2025 ·

The Williams Syndrome Foundation was formed in 1980 and is run by parents for parents of children with this rare condition which causes heart and kidney problems and learning difficulties. It desperately needs funds to finance its ambitious research and family support programmes which include national conventions and regional meetings.

Story

Last year, our son Freddie was diagnosed with Williams Syndrome.

It is a rare genetic condition which can lead to delays in cognitive development and potential heart problems, alongside other complications.

Since we received the diagnosis, the Williams Syndrome Foundation has provided us with support and most importantly information about this little-known condition. The information received has helped us plan for Freddie’s future and have an idea of what we can expect going forward.

In August to raise money for Williams Syndrome Foundation which have in a short period of time become close to our hearts we are going to be completing the 25KM London Summer Walk.

All donations, whether you can give a little or a lot would be massively appreciated and will go to a cause that we know will make a difference to people who are going through a situation like we did.

Thank you

Donation summary

Total
£3,553.00
+ £670.13 Gift Aid
Online
£3,553.00
Offline
£0.00

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