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I'm Joining Team Archie and Ava to help The Lily Foundation beat Mito and support families everyday

Gary Macey is raising money for The Lily Foundation

London Marathon 2027 - Sunday · 25 April 2027 · Start fundraising for this event

Mito warrior Archie (5) & his sister Ava (4) along with their family and friends want to support The Lily Foundation as much as possible as we want to do all we can to find a cure so that it can help Archie and many others affected by Mito.

Story

Mito Warrior Archie (5) & his little sister Ava (4) 💜🏃‍♂️

I’m Archie and Ava’s Dad, and in April 2027 I’ll be running the London Marathon for The Lily Foundation.

Archie has a very complex life and is registered blind. He has to eat every 90 minutes to keep his blood sugars stable. He lives with low muscle tone, pain and extreme fatigue, yet despite everything he is the happiest little boy who loves life and never lets his condition stop him from doing what makes him happy.

The Lily Foundation supports families just like ours, providing hope, support and funding vital research into mitochondrial disease—a condition that currently has no cure.

This marathon is also a personal challenge for me. I live with Ankylosing Spondylitis, an autoimmune disease that causes chronic pain, stiffness and fatigue. Running 26.2 miles will not be easy, but I’m determined to do it for Archie, Ava and every family affected by mito.

If you’re able to donate, no matter how big or small, we would be incredibly grateful. Together we can help bring hope, support life-changing research, and move closer to finding a cure.

Thank you so much for your support. 💜

Donation summary

Total
£20.00
+ £5.00 Gift Aid
Online
£20.00
Offline
£0.00

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