I’m asking for your support with a small donation today! My aim is to achieve £1000 for the Aniridia Network.

Aniridia is a genetic condition, which causes a lack of irises (the coloured ring) in the eyes and poor vision from birth.

To picture a world with poor vision from birth, is to imagine my 7 year old niece who was born with this incurable genetic eye condition. Whilst Sabrina has limited sight, she is a resilient and cheeky little girl who brings so much joy to our family and anyone who knows her.

My appeal is to support the Aniridia Network, who since 2000 have been helping people with aniridia as well as their families, doctors and teachers to be: hopeful, confident, supported and well informed about aniridia and related issues.

To earn your support, I will be tackling the National Three Peaks Challenge, which involves climbing the three highest peaks of Scotland, England and Wales, within 24 hours. The total walking distance is 23 miles (37km) and the total ascent is 3064 metres (10,052ft), all in the aid of this important cause.

Thank you for joining me in making a difference for those affected by Aniridia.

What is aniridia?

Aniridia is a rare genetic eye condition which causes many parts of the eye to be underdeveloped. In particular some or all of the iris, the coloured part of the eye, is missing.

From birth people who have aniridia:

● are visually impaired and some are blind

● are prone to develop other eye conditions such as cataracts, glaucoma or cornea disease which can further reduce their vision

● are sensitive to light, especially sunlight and have to use sunglasses and a hat when outdoors.

There is currently no cure for aniridia. Much more research is needed to help people with aniridia keep and improve their sight. 

Who are Aniridia Network?

Aniridia Network is a small charity set up and run by people with aniridia and their families. Our vision is that people affected by aniridia are hopeful, confident, supported and well informed regarding aniridia.

They do this by:

● creating a positive, supportive network of families, individuals and professionals in order to share ideas, experiences and give emotional support

● providing information, particularly to health professionals, patients and their families, about aniridia, the related conditions and their implications for the patient

● providing information on education and the welfare system and life skills relevant to aniridia and related conditions

● promoting research into the causes, effects, treatment and management of aniridia and related conditions and publicising the results.

They are run entirely by volunteers and rely on donations to fund their work. By giving your support you can help them to achieve their goals and improve the lives of those with aniridia.

For more information on aniridia or Aniridia Network please visit http://www.aniridia.org.uk