Story
Motor Neurone Disease (MND) is a devastating, progressive condition that attacks the nerves, leaving people unable to walk, talk, eat, and ultimately breathe. There is currently no cure.
Mum was diagnosed with MND in March 2024. She has gone from a vibrant, active grandma, mum, wife and friend, full of life, to losing the use of all her limbs, slowly imprisoned by her own body. She now uses a wheelchair full-time and rarely leaves the house.
The Motor Neurone Disease Association (MNDA) has been a vital lifeline to our family since her diagnosis. I am running the London Marathon 2027 to raise funds for them.
Here is how your donation makes a direct impact:
Hands-on care: Funding specialist MND care centres and coordinators who guide families through every stage of the disease.
Vital equipment: Providing grants and loans for essential home adaptations, wheelchairs, and communication aids that give people their voices back.
Support when you need it: Running the MND Connect helpline, offering emotional, practical, and financial guidance to people living with MND and their carers.
Research: Funding clinical trials and scientific research to find effective treatments and, we hope, one day a cure.
I don't know how much longer Mum has. I do know the MNDA has made her life, and ours, immeasurably better.
Please donate if you can. Every donation pays it forward for another family like ours, and helps make sure no one faces this disease alone.
We have launched a YouTube channel called MND: What I've Learned, to share the things we have learned on the way caring for someone with MND to pay it forward for others. Find the link here - feel free to like and share!
